Welcome To Our Story

When I found out, I was pregnant with Mason, I had already experienced seven miscarriages and one still birth. Finding out I was pregnant began months of worry and wonder. 

When the day finally came to take him home, I cried because he was happy, healthy and going home. What I didn't know is, he was showing signs of a neurological disorder that no one was looking for. Labor and delivery teams are not trained to be looking for neurological disorders. 

We would do all the things from sleeping and naps, oh how I miss nap time. Eat, play and sleep. Life was good. Or was it? Mason slept on my chest while I was reclined in a chair for the first 3.5 years and never would swaddle. Serious neurological disorder red flag!

Those milestones they check for, we didn't meet all of those either. Just enough for doctors to say "let's give it a little more time".

By two years old, my mommy instincts were unbearable. If one more person said "give it time" or "he's just slow for his age", I would of cracked. That's when I began to take control of this situation.

Ever heard of "Mama Bear"?  I laugh when some people use the term because there's many people who have no idea!

I begged a private OT / Speech Therapy center for an appointment. When we finally got passed the receptionist who assured me no one is ever seen without a referral and insurance won't pay, etc etc. (ok, she was doing her job but when a mom literally begs for an appointment, she's not playing!) we received a diagnosis. A few therapy sessions into this, an OT walks into the room and said she felt the diagnosis was wrong. Me too but at that time, I was just damn glad someone knew something was off and helping.

At 2.5 Mason would receive his diagnosis but then what?  A neurological disorder is a life sentence not the common cold.

Looking back, I do feel we were on the right path and truly had a good plan going. Then along came school!!

School! Holy Hell! Public School is not the place for a child with a neurological disorder. Do whatever it takes within the law to get your child out of the public school system. I'll be sharing our story and experiences on the blog. Also helping you, help your child.

Welcome to our story!! I'll be sharing about our lives, recipes, tips and tricks for you and who knows what else.  This is our story and one thing about life with a  neurological disorder there's never a boring day.

If you ever have questions, please use the contact form and I will answer them between working, snacks, homeschooling and dogs barking. yes, I'm a mom juggling it all.

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